Each day is a new adventure

Lilypie Premature Baby tickers

Thursday, May 10, 2012

Letters Dd and Ee

I have fallen behind on posting!! May always seems to be one of the busiest months of the year and it is definitely the case again this year. The twins are doing great – growing and changing each and every day. They can now say a few sentences, omitting a word here and there, such as, “Where dada go?” and “Sissy see moon?” They still adore books and music. They sing all of the time, even when there is no music playing. Tayden will sing a medley combining Baa Baa Black Sheep, Winkle Winkle, Happy Birthday, Where is Fumbkin, Jingle Bells and Jesus Loves Me. Brooklyn will dance along, loving every minute. They have both become obsessed with going to the car wash (thanks Dada), and anytime that we get ready to leave the house they want to go there first.

Our daily “preschool time,” usually goes really well, or they have no interest at all. I have quickly learned when it is best to save an activity for later. In the last two weeks we covered Dd: duck, dog, dinosaur (theme), dolphin, and donkey.  For Ee we covered: egg, elephant, Elmo, eagle, elf, and envelope.  The theme for Ee week was the sky – sun, moon, and stars. They love anything that involves the glue stick and have more fun pulling off the items that we have glued down.

ECI came on Tuesday and we had a fantastic session.  The occupational therapist brought a lot of more challenging puzzles and as soon as she walked in the door Tayden started saying, "Puzzle?"  She was amazed at how much the twins are talking and commented that their vocabularies are exceptional for two year olds!!!  Our last visit (hopefully) and final evaluation is in late June and she believes without doubt that neither of them will qualify for services any longer!  What a blessing!!!  I am eager to see how they score - the age equivalency. 

Last week was a rough week emotionally for me. Our sweet school nurse lost her battle with a very brief illness. This was a hard loss for our small campus, compounded with the loss of a young teacher last year. Both of these women battled courageously against very aggressive illnesses and were called home within a matter of months. This loss was a huge reminder of the fragility and preciousness of life. I was in need of some happy news, so I turned to the blog I had recently started following – www.averycan.blogspot.com about a precious family whose 5 month old daughter Avery was battling SMA (Spinal Muscular Atrophy). Her doctors expected her life expectancy to be around 18 months of age. After receiving this crushing news, her amazing parents started a “bucket list” of things for her to accomplish before her life was cut short. The family took a ton of pictures documenting these tasks being accomplished and always gave commentary that made me laugh out loud. They wrote the blog through the eyes of a 5 month old, which was really clever. As I pulled up the blog, I could not believe my eyes. Precious Avery lost her battle to SMA, only 24 days after her diagnosis. Needless to say, that night was especially bittersweet for me. I held the twins a little tighter than usual and gave a few more hugs, kisses, and I love yous – what a powerful reminder that we should never take being healthy or having healthy children for granted.  Again, I must remind myself that so many things I place as priorities on my to do list, do not matter at all in the grand scheme of things.  All that truly matters is my faith, my family, and my friends.

My parents always made sure that we did things daily to make memories.  We ate dinner together - at the kitchen table and we faithfully took family vacations, where we shared moments that we still remember as if they happened yesterday.  I remember specifically when my dad insisted on going through a carwash on our way out of San Antonio (who washes their car before getting on the highway for 5 hours?).  He felt the need to roll his window down to fold the side mirror in, and at that very moment we were all blasted with the turbo stream of water intended for the window.  He was wet the entire way home.  My parents created a legacy for us that I am already trying to share with the twins.  Both of my parents were extremely hard workers that provided for our family and made huge sacrifices so that we could have the things that we did.  That is important, but what I remember most is the memories of a family life that we shared together every single day.  My parents walked each step of life with us - they were hands-on parents that taught us what unconditional love was (my mom still does).  They loved each other and gave us an excellent example of what a blessing your mate can and should be.  I hope that when my time comes, the twins will be able to have those same memories to hold on to, until we are reunited.

I know that heaven welcomed these new precious angels, and they both now live illness-free, without pain, hurt, or fear – the same knowledge that comforted me when we lost my dad. I cannot help but think of the individuals left behind. In both situations, the family’s “normal” became caring for their loved one’s every need. I often wonder how they got out of bed the next morning and continue to do so each day, to face a new day without the person they had been taking care of for so long. How will they be able to resume the "normal" activities of their lives - now that there is a huge emptiness?  I continue to pray that God will surround these families with peace beyond measure, and that they will be comforted in knowing that as Christians, death is not final, nor is it goodbye.  I long for the day I am reunited with my dad in Heaven, and for the moment I can meet my Savior face to face.  I would like to leave you with a powerful thought.  Avery’s dad put things beautifully when he said, “Do you live life dying, or die living life?”

Dalmation puppet


Caught him reading


Brooklyn waiving like a politician

Dinosaur puppet

Look who I caught coloring...

Doctor Doggy


Making eggs with cotton balls

Brooklyn chose to glue her egg to the door

Then helped Tayden do the same

Notice all of the beautiful coloring


eating lo mein - one of their favorite foods

elephant puppet

Below are the pictures from photo shoot #1 that we purchased.  Our scanner is not too great, so on the pictures with a dark background you can seem a million dust particles.